May has been an incredible month so far! We have had so many wonderful things happen. I'm sure everyone we talk to has been told Lilly's surgery has been moved to next spring as long as all continues to go well. We are trying to fatten our little girl up to make the surg easier on her tiny body. It is so nice to take a small breath and know that she will not be in the hospital for a while! On top of that we have received the great news that our CHD awareness quilt square is completed and soon will be added to a Quilt with other warriors/angels to promote awareness. It is so cute we requested ladybugs and butterflies since she is our little Lillybug/ladybug.... and that is exactly what we got! So happy and excited to see the finished product! And here's even more good news.... a foundation called Icing Smiles has found a local baker to donate a cake for Lilly on her Birthday! I will have to add their links because these people are great! The local bakery is called Faithfully cakes and I can't say enough about how excited we are to see Lilly's Monkey cake and to taste it!!! Hurry up June 26th! We are having her party at a local park so the kiddo's can play and enjoy the day so fingers crossed by then the rain will stop!!! We have been super busy with Nana's Birthday, Mother's Day, Daddy's Birthday, Noah's Birthday, and coming up we have Brant's Pre-school Graduation and Last day of school, a fashion show (career related) for Drew, a town carnival, and upcoming summer break. Lilly has been enjoying the warmer weather and wants to be outside everyday. She doesn't mind the rain but absolutely hates the thunder and lightning. She has also discovered MONSTERS thanks to Calliou....yep Calliou has her terrified of the dark...thanks Calliou. She wants to go on a nightly walk up the street and has fallen madly in love with her boyfriend (um ya she's not yet 2). LOL her boyfriends name???? JUSTIN BEIBER. My girl has her first crush. She makes us play "Baby" all day long and dances to the video. She even has attempted to follow his dance moves. It's a Youtube video waiting to happen. It's super cute, super sweet, and super LILLY. She is growing up. Most days are awesome and we try not to think about how she is different...or special.... other times I find my self blubbering like an idiot.... like the other day when we were playing dress up and she was wearing around my veil from my wedding (it's attached to a tiara) and she was just so sweet and beautiful looking dancing around in it that I began wondering silly things such as will she get married, will she live that long, will she have a good life, will she be able to have kids.... it just fills your mind sometimes....it's like a tidal wave of worry, of fear.... all you can do is try to keep your head up.... and we do... as soon as she smiles it melts away the worry and brings us back to the hear and now.... the happiness and joy of the moment... oh how I love those little moments.... and my little Lilly. I am so grateful for all those who have given their time, talents, and support along our journey. Please hug your loved ones tightly and say a prayer for all these little warriors and their families....
God Bless,
Lydia
Lilly's CHD awareness quilt block....
Here are all the great links:
http://www.chdquilt.org/
http://www.icingsmiles.org/ http://www.faithfullycakes.com/ please show them some support and love.... add them on facebook and send them some thanks! They really do make a differnce to our children.... and to us parents.... they give so much... they are really angels here on earth!
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